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Reye's Syndrome: What You Should Know 
 
by Mary M. Alward August 30, 2005

The Reye’s Child’s Rights

All children between the ages of three and twenty-one years are entitled to a free public education that has been tailored to fit their needs. It is federal law that all school districts provide special education when necessary. The law includes therapy and transportation and is not limited to children who have had Reye’s Syndrome.

The services for children under three years old vary greatly from one state to another. Some states provide rehabilitation and education while others don’t. Be sure to contact your state’s Department of Education and speak to someone from the Special Education Division to find out if your infant or toddler will be offered this service and if they are eligible.

Institutional Care

A very small number of children who have suffered effects of Reye’s Syndrome require institutional care. The decision to institutionalize a severely handicapped child should be based on the needs of the child and the family, not on medical information.

Other Options

Parents of a disabled Reye’s child should research the Individuals with Disabilities Act to ensure their child receives the benefits and services to which they are entitled.

More Facts About Reye’s Syndrome

  • Remember that not all children who contact Reye’s Syndrome are disabled.

  • If disability does occur, it can range from very mild to extremely severe, depending on soon diagnosis is made and treatment is given.

  • Only a very low percentage of children contact Reye’s Syndrome a second time.

  • Help is available for Reye’s children and their families.

Reye’s Syndrome is definitely a debilitating disease that greatly affects children and their families. If you need more information on Reye’s Syndrome, contact the National Reye’s Syndrome Foundation (NRSF.)

 

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